Another Sleepy Day

Fiona had an even more peaceful night last night, and is still sleeping very soundly. I am approaching boredom and miss Doug. I'm trying to introduce more and more food (formula) to Fiona's system. The better she tolerates food, the sooner the IV can come out.

Today will probably be a long day because she is required to stay put in bed, but all the heavy- duty medications are being reduced. I went to get the story books and DVDs from the car, and there's always T.V. so I should be able to convince her to stay put. She is still not speaking much. Only to say very loudly "I want to go home now". Supposedly, the Fentanyl makes the kids cranky, but that doesn't seem to be the case with Fiona. She is just making very rational and normal requests to be done with all of this. The nurses keep commenting on how "good" she is, whatever that means.

She just woke up and asked to "get up". I explained that tomorrow there would be lots of getting up, but not today. The Mickey Mouse Clubhouse is making that idea more tolerable.

I slept in a reclining chair next to Fiona's bed, that was surprisingly comfortable. I stayed up late watching a movie, and was awakened by the neurosurgical resident at 7:30am. He did not add anything new.

I forgot to mention that Dr. Park did come by yesterday. Again, a man of few words. He just went over, peered at her up and down and said "she looks good". Lifted up the sheet and said "Fiona, can you move your legs?" Fiona wiggled each one, and he said "good". I certainly hope that wasn't his version of checking for paralysis, but I wouldn't be surprised. We have known that everything was working since back in the PICU. The nurses there were required to do periodic neurological screenings that included shining a light into her eyes, to check for pupil reactivity, and getting her to push her feet against their hands, and squeeze their fingers with her hands. I could see her responding and there was lots of strength even on the day of surgery.

I know that some of you are having trouble leaving comments on the blog, and also that it might be requiring you to sign up on google. Don't worry about all of that. We know you are all keeping track, and you can send emails to me if you want. It has just been fun to have a way to document this experience and keep a very large group of people informed all at once.

I am going to catch up on some reading. A big hello to Jacob and Liz who I know are watching. Fiona is very happy to know you are following her blog.

Chris